Local Networks. Large Impact.

OHDSI Portugal - National Node

Local Collaboration. European Impact.

OHDSI and OMOP have played a crucial role in standardizing healthcare data and enabling the generation of reliable Real-World Evidence. Their adoption has improved patient care and facilitated medical research on an unprecedented scale, with a growing global community committed to advancing healthcare through collaborative data science.

Portugal is at the forefront of this movement, and the formalization of the National OHDSI Node lays the foundation for a thriving community of Portuguese healthcare data partners and SMEs. This community aims to foster interdisciplinary collaboration to discuss and address national healthcare challenges through real-world evidence. The Node will also serve as a gateway for international innovation, research partnerships, and knowledge sharing around OMOP-CDM.

Community Snapshot

40

Members

12

Data Partners

4

SMEs

1

Leading Organisation

This community aims to foster interdisciplinary collaboration to discuss and address national healthcare challenges through real-world evidence.

Objectives

  • Establish a Portuguese Research Network based on OMOP.
  • Create and share deliverables.
  • Find a Portuguese OHDSI multi-stakeholder interest group.

Gallery

Focus areas

Establish a Portuguese Research Network based on OMOP

  • Promote national and international research initiatives and observational studies
  • Contribute to a nationally standardized database
  • Promote a National Network involving the industry and academic institutions

Create and share deliverables

  • Best practices for data-driven healthcare research
  • ETL processes
  • Data Quality
  • Vocabulary improvement and national/regional codes mapping (e.g. CHNM, ICD10, DRG)
  • Define common administrative procedures to streamline research collaborations (DPO approval, Ethics Committee approval, etc)

Find a Portuguese OHDSI multi-stakeholder interest group

  • Involve local Portuguese stakeholders in the community, while actively working to expand the network of partners
  • Provide technical and operational support to potential new data partners
  • Promote regular meetings between the national and international communities to share knowledge and promote knowledge sharing
  • Encourage members' active engagement in OHDSI/EHDEN activities at the European level
  • Coordinate and communicate with national policy institutions, regarding projects and expectations
  • Disseminate the value of OMOP-CDM more widely by organizing events and activities for academia, healthcare organizations, regulatory bodies, and industry partners

Governance Model

  • The objective of the proposed governance model is to define the annual workplan and responsibilities of the Portuguese Data Node Members.
  • Leading Organization: Promote trimestral meetings; Define trimestral meeting agenda and share their outcomes; Responsible by the relationship management with EHDEN, data nodes, and other entities; Share information with other data node members.
  • Data node members: Research and share information with data node leading organization; Active participation in the promoted meetings; Available to present developed work with data node members.

How to join OHDSI Portugal?

Governance

  • Leading Organisation(s): CENTRO HOSPITALAR E UNIVERSITARIO DE COIMBRA EPE (CHUC)
  • Name of the Legal Representative: Alexandre Jose Lourenco Carvalho
  • Name of the contact person within the Organization: Carmen Nogueira (This email address is being protected from spambots. You need JavaScript enabled to view it.) & Patricia Couceiro (This email address is being protected from spambots. You need JavaScript enabled to view it.)
  • Country of the Organization: Portugal
  • Address of the Organization: Av. de Bissaya, Praceta de Mota Pinto, Coimbra 3000-075, Portugal
  • VAT No. of the Organization: 510103448
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Promote trimestral meetings and share their outcomes.

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Research and share information with data node leading organization.

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Active participation in the promoted meetings.

Activities

Publications

  • Gavina C, Carvalho DS, Pardal M, Afonso-Silva M, Grangeia D, Dinis-Oliveira RJ, Araujo F, Taveira-Gomes T. Cardiovascular Risk Profile and Lipid Management in the Population-Based Cohort Study LATINO: 20 Years of Real-World Data. J Clin Med. 2022 Nov 18;11(22):6825. doi: 10.3390/jcm11226825.
  • Gavina C, Carvalho DS, Valente F, Bernardo F, Dinis-Oliveira RJ, Santos-Araujo C, Taveira-Gomes T. 20 Years of Real-World Data to Estimate the Prevalence of Heart Failure and Its Subtypes in an Unselected Population of Integrated Care Units. Journal of Cardiovascular Development and Disease. 2022; 9(5):149.
  • Carla Santos-Araujo, Luis Mendonca, Daniel Seabra Carvalho, Filipa Bernardo, Marisa Pardal, Joao Couceiro, Hugo Martinho, Cristina Gavina, Tiago Taveira-Gomes, Ricardo Jorge Dinis-Oliveira, Twenty years of real-world data to estimate chronic kidney disease prevalence and staging in an unselected population, Clinical Kidney Journal, Volume 16, Issue 1, January 2023, Pages 111-124.

Upcoming events

  • N/A
Interested in joining OHDSI Portugal?

The Node serves as a gateway for international innovation, research partnerships, and knowledge sharing around OMOP-CDM.