OHDSI NL 

Background 

Our vision is to advance observational health research on a national level using the OMOP CDM, and the OHDSI toolkit, as a common foundation. Our OHDSI NL node will serve as a unifier to help all involved forward on the journey towards more reliable and reproducible research. OHDSI NL will be coordinated by the Health Data Science group from Erasmus MC, which has a close link to both the EHDEN and DARWIN coordinating center.  

 

Objectives 

As a national node our objective is to create a local OHDSI community in the Netherlands. With a common healthcare system, coding systems and common EHR vendors uniting us, we face similar challenges when reusing healthcare data for observational research. Instead of dealing with these challenges individually, we hope to gain synergy from joining forces.  

In short, our goals are to:

  • create a national community where we can learn from each other by sharing knowledge
  • maintain an overview of national data partners & data sets mapped to the OMOP CDM
  • generate exposure of OHDSI within the Dutch health research world
  • build a network of knowledge to support (cross-institutional) observational research on a national level
  • convince and support data holders to map their data to the OMOP CDM
  • identify potential research opportunities on a national level
  • perform research with observational data on a national level
  • contribute to international network studies

Leading Organisation 

Renske Los & Aniek Markus
Department of Medical Informatics, 
Erasmus MC University Medical Center 
PO Box 2040, 3000 CA  Rotterdam, The Netherlands 
Visiting address: Na-2613, Dr. Molewaterplein 40, 3015 GD Rotterdam 
This email address is being protected from spambots. You need JavaScript enabled to view it.

 

Members 

 Name

Organisation 

Department 

Renske Los Erasmus MC Medical Informatics (Health Data Science group)
Aniek Markus Erasmus MC  Medical Informatics (Health Data Science group)
Mees Mosseveld Erasmus MC Medical Informatics (Health Data Science group)
Maxim Moinat Erasmus MC  Medical Informatics (Health Data Science group)
Victor Pera Erasmus MC Medical Informatics (Health Data Science group)
Tom Seinen Erasmus MC Medical Informatics (Health Data Science group)
Marcel de Wilde Erasmus MC Medical Informatics (Health Data Science group)
Ross Williams Erasmus MC Medical Informatics (Health Data Science group)
Cynthia Yang Erasmus MC  Medical Informatics (Health Data Science group)
Anton Porcu Erasmus MC Research Suite
Lisa Hoogendam Erasmus MC Plastic and Reconstructive Surgery and Hand Surgery
Ruud Selles  Erasmus MC Rehabilitation Medicine & Plastic and Reconstructive Surgery and Hand Surgery
Harm Slijper Equipe Zorgbedrijven / Erasmus MC  
Chiara Attanasio IKNL  
Irene Cara IKNL  
Jelle Evers IKNL  
Peter Prinsen IKNL  
Maaike van Swieten IKNL  
Manon Merkelbach VieCuri Medical Center  
Ronald Cornet Amsterdam UMC Medical Informatics
Joris Lieverse Amsterdam UMC  
Ferishta Raiez Amsterdam UMC NICE R&S / Medical Informatics
David Vallez Garcia Amsterdam UMC  
Prabash Darshanapriya Maastricht University  
Komal Gilani Maastricht University  
Anne van der Kant Health-RI  
Pim Volkert Health-RI & TU/e  
Sofia Bazakou The Hyve  
Julia Kurps The Hyve  
Stefan Payralbe The Hyve  
Azadeh Tafreshiha The Hyve  
Anne van Winzum The Hyve  
Hanne van Ballegooijen IQVIA  
Milou Brand IQVIA  
Xose Fernandez IQVIA  
Nikolai Grewe IQVIA  
Hugo Vernooij IQVIA  
Dina Vojinovic IQVIA  
Tim Grevelink  Timformatie  
Sebastiaan van Sandijk Odysseus Data Services  
Jos Hendrikx Santeon  
Sander Dalhuisen  Janssen-Cilag   
Robert Snijder Astellas  
Arie de Haan Cloud Senang  
Piers Mahon Digicore  
Stefan Haan LOGEX  
Bjorn Wouters LOGEX  

 

Data Partners 

Data Source Name

Organisation 

Type 

Link 

IPCI
Department of Medical Informatics, Erasmus MC EHR, Primary Care
Netherlands Cancer Registry 
IKNL Registry
AMYPAD PNHS
Amsterdam UMC Research (Preclinical Alzheimer's progression)
HiX
VieCuri Medical Center Hospital
NICE registry
NICE R&S Intensive Care data (NL)
Pulse Equipe Zorgbedrijven outcomes (prom, prem trom), patient data, appointment data https://www.handwriststudygroup.org/
Many different sources  IQVIA hospital, GP, claims 
ICUdata Stichting ICUdata Intensive Care EHR

 

How to get involved? 

We would like to invite you to join our national node! Whether you are new to OHDSI or a veteran, together we can make a difference. Please fill out this form, and we will get in touch with you.